All tagged Dwarfism Awareness
The attending doctor in the NICU and Lily’s NICU nurse came into my room, telling me that Lily was not doing well and that they needed my consent to put a catheter into her Umbilical Cord and they were going to Intubate her. Lily was not doing well and they needed to move fast.
I remember getting the phone call. I was at work and stepped outside once my phone started to ring. I was hit with the hot oven air on a mid-June summer day in Redding. “We have your C-Section scheduled!” they proclaimed. “It will be Sunday, July 8, 2018 at 8am. Dr. Kang would like to have the best Anesthesiologist in all of Redding, and the 8this a day that both doctors will be on-call and available. Your Pre-Op appointment will be on the 6th and they will give you all the details you need to know.”
It was January 10, 2018 and we were about to let out one of our biggest secrets yet… Jeremy and I were 11 weeks pregnant! However, if you haven’t been following us for very long, Jeremy and I both have achondroplasia, a genetic condition that causes the most common form of dwarfism. When Jeremy and I wanted to conceive, we knew there would be some risks we’d have to face and some 50-25-25 statistics.
I approach this topic with caution. It’s one that’s near and dear to my heart, it’s sensitive for many, it’s complex, and it’s probably theological. So with that, I bow my humble head, to say that this is merely from my personal experience, and I’m not speaking for anyone else, other than myself. I’m also not claiming that I am right, that you are wrong, nor that we have to completely understand the complex nature of the Creator of the Universe
It’s no secret that 2016 was hard. We welcomed 2017 with open arms, high hopes, and expectations for some much needed breakthrough. Everywhere we went, we kept hearing that "2017 was going to be marked as a year of hope and breakthrough," so we were definitely ready with arms wide open!
It’s on my heart to end October and start November with some practical ways to love me vs. hurt me, the do’s and the don’ts. Most people have the best intentions. They want to love well and they mean the best, but sometimes the things they do or don’t do, can create a lot of hurt unknowingly, so this is my attempt to clear up any uncertainty.